The Power of Reconnection and Collaboration in the Face of Childhood Brain Cancer

By Nicole Giroux, Founder and Executive Director of the Lilabean Foundation for Pediatric Brain Cancer Research


Life can present startling coincidences. In the early 1990s, Meg Cortezi and I were high school classmates and teammates at Notre Dame Preparatory School in Baltimore, MD. Little did we know that a friendship that started in the halls of NDP would be rekindled in the halls of Children’s National Hospital in Washington, DC, thirty years later. Our former mutual worries about mundane high school things suddenly transitioned into the shared terror of having a child with brain cancer. 


In 2015, when Meg’s son Ben was diagnosed with medulloblastoma, an aggressive malignant brain cancer, my family was already several years into our daughter Lila’s brain cancer journey. Lila was diagnosed in 2009 at 15 months old with inoperable low-grade glioma. Several years later, my husband and I started the Lilabean Foundation for Pediatric Brain Cancer Research (LBF). Our foundation's singular mission is to fund collaborative and innovative research to discover safer and more effective treatment options for children with all types of brain cancer. Thirteen years later, I am proud to share that LBF has raised over $5 million and has funded some of the world’s top neuro-oncology institutions. 

I was completely shocked to learn of Ben’s diagnosis. What are the odds that two friends from a small class of 75 women both have children with brain cancer? This disease is so often categorized as ‘rare,’ and it’s instances like these that remind us that, in reality, it is far too common. The bonds formed in high school allowed us to reconnect immediately. Ben was in the throes of toxic treatments and there was no time to be wasted. Meg was quick to realize the importance of funding research to identify treatment options for kids like Lila and Ben. It wasn’t long before she became an incredible advocate and involved her family, friends and colleagues at TEKsystems in her advocacy.

TEK Systems quote at AWS Summit in white text and light blue background

In 2019, Meg became an LBF board member. Soon thereafter, TEKsystems began partnering with LBF more frequently and intentionally. Since 2020, TEKsystems has supported our mission and has acted compassionately towards the objectives of our foundation. TEKsystems has played an important role in raising awareness about the severity of childhood brain cancer and the dire need for private funding. For instance, most people don’t know that approximately 11 children are diagnosed with a malignant brain tumor every day in the United States.

TEKsystems’ support is helping to educate communities on these alarming statistics. And even though brain cancer is the deadliest form of cancer in children, the pediatric brain cancer landscape is grossly underfunded. TEKsystems continues to help LBF fill the federal funding gap with private support for institutions, including the Brain Tumor Institute at Children’s National Hospital, where Lila and Ben remain patients. The relationship between TEKsystems and LBF is an excellent example of the impact that is possible when partnerships are prioritized. 


Ben and Lila are two of many LBF HEROES. Their stories inspire. Meg’s willingness to share her family’s story has paved the way for LBF to connect with other families including TEKsystems’ colleague, Tim Brown, whose daughter Abby also suffers from low grade glioma brain cancer.

The Lilabean Foundation Heores Lila and Ben

At our 30 year high school reunion, Meg hosted a cocktail party for our NDP classmates to learn more about LBF. It was powerful to connect with old friends and share our stories of heartbreak and resilience.


It is surreal to think that Ben and Lila are now the same ages that Meg and I were when we first met. I am so grateful for Meg’s friendship and commitment to the Lilabean Foundation. Our partnership with TEKsystems is a testament to the power of turning suffering into hopeful action.


May is brain cancer awareness month and we hope that you will consider becoming an 11for11 member in honor of those approximately 11 children who are diagnosed with brain cancer each day. Please join us in our mission to give hope to children and families suffering from this terrible disease.

Kelly Barch headshot
December 1, 2025
The Lilabean F oundation (LBF) is thrilled to announce the appointment of Kelly Barch as our new Executive Director. Kelly will work closely with our Founder and President, Nicole Giroux , to advance the mission of the Lilabean Foundation and deepen our impact for children and families affected by pediatric brain cancer. Kelly is a mission-driven leader with more than 20 years of experience building programs, strengthening teams, and driving meaningful change across organizations. She spent 16 years at the National Cancer Institute, where she led enterprise-wide recognition programs, executive recruitment efforts, high-profile events, and cross-functional workforce initiatives. In addition to her public service, Kelly is the co-owner of Clotacin, a family-owned wellness company providing high-quality nutritional support to individuals affected by blood disorders. She oversaw operations, customer experience, and brand development, helping expand the company’s reach and impact. A lifelong Washingtonian, Kelly lives in Kensington with her husband, Justin, their children, Taylor and Beau, and their dog, Boudreaux. Outside of work, she loves staying active with her family and cheering on her alma mater, the LSU Tigers. When asked what excites her most about this new chapter, Kelly shared: “I am honored to step into the role of Executive Director and excited to bring my passion for service to the Lilabean Foundation. The opportunity to fund critical pediatric brain cancer research and help raise awareness means so much to me, and I am truly grateful to be part of this mission.” Please join us in warmly welcoming Kelly to the Lilabean Foundation. We look forward to the leadership, energy, and heart she will bring to this work!
November 12, 2025
On November 1, 2025, the Lilabean Foundation for Pediatric Brain Cancer Research (LBF) hosted its 14th Annual Fall Ball at The Schuyler at the Hamilton Hotel in Washington, D.C., raising over $1.1 million to support vital pediatric brain cancer research. This fundraising milestone reflects the unwavering commitment of the foundation’s community and partners to improve outcomes for children diagnosed with brain cancer. The evening was one of celebration and remembrance, as we honored three cherished LBF Heroes—Cameron, Kasey, and Reed—though their lives were far too short, their strength, joy, and bravery continue to guide our mission and fuel our determination. The evening’s program was filled with heartfelt speeches that reminded guests of the night’s true purpose. LBF Founder and President Nicole Giroux opened the program, sharing, “Studies say that we can go weeks without food, days without water, minutes without oxygen, but we can’t LIVE a MOMENT without hope. Your presence here tonight gives me and so many others immeasurable hope. Hope is what propels us forward. Hope gives us strength to endure hardship and believe in a better future.” The first award of the night was the LBF “Cam’s Crew” Volunteer of the Year Award , presented to the Behr Family . Evan and Caitlin Behr, along with their family, have been deeply involved with LBF since 2021, generously sharing their time, expertise, and resources. LBF is deeply grateful for their unwavering commitment and generosity, which embody the spirit of this award, created in honor of LBF Hero Cameron Corno and her family. One of the most moving moments of the night was the presentation of the Jack Purssord Courage Award to Ben Bellavia-Cortezi , age 18, honoring his extraordinary strength and resilience throughout his battle with medulloblastoma. Ben’s remarks captivated the audience with their wisdom and grace. He shared, “Every single pediatric brain cancer patient and survivor is so much more than their diagnosis… I believe strongly that with more funding, researchers can develop better treatments- ones that not only save lives but also preserve the quality of those lives.” Ben is applying to colleges for next fall and plans to study mechanical engineering. The funds raised at this year’s Fall Ball will go directly toward groundbreaking research initiatives to discover new treatments and scientific advances for children with pediatric brain cancer. The Lilabean Foundation extends heartfelt thanks to all the sponsors, attendees, volunteers, and donors who made this year’s event such a success. As Ben so wisely put it, “Together, we can give more kids the chance to grow up, chase their dreams, and tell their own story.” Learn More and Get Involved For those unable to attend the Fall Ball, there are still many ways to be part of the Lilabean Foundation’s mission. To learn more about upcoming events, volunteer opportunities, or how to make a donation, please visit www.lilabeanfoundation.com . Together, we can continue to bring hope and funding to pediatric brain cancer research.
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