LBF Supports New Position at the Brain Tumor Institute at Children’s National Hospital

LBF has made a three-year, $480,000 commitment to fund the DMG/DIPG Research Lab Program Manager Position at Children’s National Hospital in Washington, D.C. to continue progress towards a cure.


The Lilabean Foundation believes that it is the researchers and scientists who are instrumental in creating real progress in the fight against pediatric brain cancer, but between caring for patients, managing multiple research projects, working to publish findings, managing their teams, and so much more, these researchers are often stretched thin. Children are dying from brain cancer, and these researchers understand there is truly no time to waste. For this reason, the Lilabean Foundation is thrilled to announce a three-year, $480,000 pledge to Children’s National Hospital to support a dedicated Lab Program Manager for the DMG/DIPG Lab within its Brain Tumor Institute.


Over the past three years, Javad Nazarian, Ph.D., M.Sc., scientific director of the Brain Tumor Institute at Children’s National Hospital, and his team have quickly amplified their important research efforts in search of a cure. Part of this amplification is an international DMG/DIPG Translational Research Program out of Dr. Nazarian’s lab in Zurich, Switzerland. Their standard for DMG/DIPG global integration and access has come to be used as a model for difficult-to-treat brain tumors as they lead the way and exemplify the importance and success of collaboration. 


This mission has continued to expand through establishing the Diffuse Midline Glioma-Adaptive Combinatory Trial (DMG-ACT) which is a working group of 18 international institutions. These institutions utilize their individual strengths to expedite pre-clinical processes and advance the right drugs to clinic in record time. This group has generated data to support two new clinical trials in less than 36 months which is a rare feat in this space. But with this incredible progress and momentum comes more strain on Dr. Nazarian and his current team. As the research initiatives grow in meaningful ways, so must program infrastructure to ensure maximum productivity. 


For this reason, the new Lab Program manager at Children’s National will be instrumental in allowing the labs to continue to accelerate momentum to find effective treatments. This position will focus on maximizing research opportunities, activity and collaborations within the program, help with vital administrative tasks such as grant applications, increasing journal article acceptance rates and more. Lilabean is honored to continue to support the research and the individuals who are vital in helping us progress towards a cure for the deadliest types of pediatric brain tumors. Check out the clip from Dr. Javad Nazarian discussing the need and his gratitude to this community.

LBF's Transformative Partnership with CBTN Drives Groundbreaking Advances Brain Cancer Research
March 12, 2025
The Lilabean Foundation (LBF) has played a vital role in advancing pediatric brain cancer research, providing significant support to the Children’s Brain Tumor Network (CBTN) based at the Children’s Hospital of Philadelphia. From its origins as a small family foundation, LBF has grown into one of the most influential contributors to CBTN, driving innovative research and achieving new milestones in philanthropy. One of the most notable impacts of LBF’s support is its investment in Project Accelerate, an initiative designed to expedite research and enhance the Pediatric Brain Tumor Atlas. Through LBF’s backing, CBTN has been able to recruit essential data engineers and bioinformaticians, improving research methodologies and strengthening data models. This investment has helped break down silos and create more robust predictive models, optimizing diagnostic accuracy and advancing AI technology. This initiative is positioning CBTN to achieve transformative breakthroughs in precision care and treatment for pediatric brain tumors “The impact of The Lilabean Foundation's generosity cannot be overstated,” said Dr. Adam Resnick, Scientific Director of the Children’s Brain Tumor Network.” “With this partnership, we are paving the way for the next era of pediatric brain cancer treatment and care. Thanks to this continued support, we are one step closer to ensuring that children with brain tumors have the best possible outcomes.” Maximizing Research Potential and Driving AI Innovation: LBF’s contributions have also been instrumental in maximizing the impact of the National Institutes of Health’s (NIH) data generation initiative. With LBF’s support, CBTN was able to extract and ship over 7,000 specimens, enabling the standardization of critical molecular data. This data has formed the foundation for AI-driven technologies, putting CBTN at the forefront of AI research and allowing for discoveries that were once unimaginable. By integrating clinical, molecular, and imaging data into a single multimodal dataset, this collaboration is enhancing the ability to create more individualized and effective treatment plans for children with brain tumors. “The integration of this multimodal data is a game-changer,” said Nicole Giroux, Executive Director of The Lilabean Foundation. “It has the potential to dramatically improve how we understand and treat pediatric brain tumors.” Preparing for Future Breakthroughs: With LBF's continued support, CBTN is now poised for its next big leap in research. The foundation’s investment in Project Accelerate has led to the creation of an extensive multimodal dataset, which was instrumental in securing a first-of-its-kind award from the Advanced Research Projects Agency for Health (ARPA-H). This prestigious award, focused on pediatrics, combined with a new partnership with Amazon Web Services, positions CBTN for major advancements in AI capabilities and further opportunities for breakthrough research. A Legacy of Impact: LBF’s sustained commitment to CBTN is a testament to the power of philanthropy and the profound impact that a dedicated donor community can have on children’s healthcare. Their investments have not only laid the groundwork for groundbreaking research but are also shaping the future of pediatric brain tumor treatment and care, from bench to bedside. “We are incredibly grateful for the support of The Lilabean Foundation,” said Jena Lilly, executive director of CBTN. “Their partnership has been invaluable in driving forward our shared mission to improve the lives of children battling brain tumors. Together, we are creating a future where cures and better treatments are within reach.”
Bethesda magazine features The Lilabean Foundation hero in January/February issue
February 11, 2025
We are thrilled to be featured in the Bethesda Magazine January/February 2025 edition! It’s a privilege to share the work we’re doing at the Lilabean Foundation to support families and children and the heartfelt origin story of why the foundation exists. Grateful for the opportunity to amplify our mission and continue making a meaningful impact in the community. Thank you Amy Halpern and Bethesda Magazine for capturing and creating such a heartfelt feature. Click here to read the article and the January/February edition of Bethesda Magazine.
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