LBF Supports New Position at the Brain Tumor Institute at Children’s National Hospital

LBF has made a three-year, $480,000 commitment to fund the DMG/DIPG Research Lab Program Manager Position at Children’s National Hospital in Washington, D.C. to continue progress towards a cure.


The Lilabean Foundation believes that it is the researchers and scientists who are instrumental in creating real progress in the fight against pediatric brain cancer, but between caring for patients, managing multiple research projects, working to publish findings, managing their teams, and so much more, these researchers are often stretched thin. Children are dying from brain cancer, and these researchers understand there is truly no time to waste. For this reason, the Lilabean Foundation is thrilled to announce a three-year, $480,000 pledge to Children’s National Hospital to support a dedicated Lab Program Manager for the DMG/DIPG Lab within its Brain Tumor Institute.


Over the past three years, Javad Nazarian, Ph.D., M.Sc., scientific director of the Brain Tumor Institute at Children’s National Hospital, and his team have quickly amplified their important research efforts in search of a cure. Part of this amplification is an international DMG/DIPG Translational Research Program out of Dr. Nazarian’s lab in Zurich, Switzerland. Their standard for DMG/DIPG global integration and access has come to be used as a model for difficult-to-treat brain tumors as they lead the way and exemplify the importance and success of collaboration. 


This mission has continued to expand through establishing the Diffuse Midline Glioma-Adaptive Combinatory Trial (DMG-ACT) which is a working group of 18 international institutions. These institutions utilize their individual strengths to expedite pre-clinical processes and advance the right drugs to clinic in record time. This group has generated data to support two new clinical trials in less than 36 months which is a rare feat in this space. But with this incredible progress and momentum comes more strain on Dr. Nazarian and his current team. As the research initiatives grow in meaningful ways, so must program infrastructure to ensure maximum productivity. 


For this reason, the new Lab Program manager at Children’s National will be instrumental in allowing the labs to continue to accelerate momentum to find effective treatments. This position will focus on maximizing research opportunities, activity and collaborations within the program, help with vital administrative tasks such as grant applications, increasing journal article acceptance rates and more. Lilabean is honored to continue to support the research and the individuals who are vital in helping us progress towards a cure for the deadliest types of pediatric brain tumors. Check out the clip from Dr. Javad Nazarian discussing the need and his gratitude to this community.

Kelly Barch headshot
December 1, 2025
The Lilabean F oundation (LBF) is thrilled to announce the appointment of Kelly Barch as our new Executive Director. Kelly will work closely with our Founder and President, Nicole Giroux , to advance the mission of the Lilabean Foundation and deepen our impact for children and families affected by pediatric brain cancer. Kelly is a mission-driven leader with more than 20 years of experience building programs, strengthening teams, and driving meaningful change across organizations. She spent 16 years at the National Cancer Institute, where she led enterprise-wide recognition programs, executive recruitment efforts, high-profile events, and cross-functional workforce initiatives. In addition to her public service, Kelly is the co-owner of Clotacin, a family-owned wellness company providing high-quality nutritional support to individuals affected by blood disorders. She oversaw operations, customer experience, and brand development, helping expand the company’s reach and impact. A lifelong Washingtonian, Kelly lives in Kensington with her husband, Justin, their children, Taylor and Beau, and their dog, Boudreaux. Outside of work, she loves staying active with her family and cheering on her alma mater, the LSU Tigers. When asked what excites her most about this new chapter, Kelly shared: “I am honored to step into the role of Executive Director and excited to bring my passion for service to the Lilabean Foundation. The opportunity to fund critical pediatric brain cancer research and help raise awareness means so much to me, and I am truly grateful to be part of this mission.” Please join us in warmly welcoming Kelly to the Lilabean Foundation. We look forward to the leadership, energy, and heart she will bring to this work!
November 12, 2025
On November 1, 2025, the Lilabean Foundation for Pediatric Brain Cancer Research (LBF) hosted its 14th Annual Fall Ball at The Schuyler at the Hamilton Hotel in Washington, D.C., raising over $1.1 million to support vital pediatric brain cancer research. This fundraising milestone reflects the unwavering commitment of the foundation’s community and partners to improve outcomes for children diagnosed with brain cancer. The evening was one of celebration and remembrance, as we honored three cherished LBF Heroes—Cameron, Kasey, and Reed—though their lives were far too short, their strength, joy, and bravery continue to guide our mission and fuel our determination. The evening’s program was filled with heartfelt speeches that reminded guests of the night’s true purpose. LBF Founder and President Nicole Giroux opened the program, sharing, “Studies say that we can go weeks without food, days without water, minutes without oxygen, but we can’t LIVE a MOMENT without hope. Your presence here tonight gives me and so many others immeasurable hope. Hope is what propels us forward. Hope gives us strength to endure hardship and believe in a better future.” The first award of the night was the LBF “Cam’s Crew” Volunteer of the Year Award , presented to the Behr Family . Evan and Caitlin Behr, along with their family, have been deeply involved with LBF since 2021, generously sharing their time, expertise, and resources. LBF is deeply grateful for their unwavering commitment and generosity, which embody the spirit of this award, created in honor of LBF Hero Cameron Corno and her family. One of the most moving moments of the night was the presentation of the Jack Purssord Courage Award to Ben Bellavia-Cortezi , age 18, honoring his extraordinary strength and resilience throughout his battle with medulloblastoma. Ben’s remarks captivated the audience with their wisdom and grace. He shared, “Every single pediatric brain cancer patient and survivor is so much more than their diagnosis… I believe strongly that with more funding, researchers can develop better treatments- ones that not only save lives but also preserve the quality of those lives.” Ben is applying to colleges for next fall and plans to study mechanical engineering. The funds raised at this year’s Fall Ball will go directly toward groundbreaking research initiatives to discover new treatments and scientific advances for children with pediatric brain cancer. The Lilabean Foundation extends heartfelt thanks to all the sponsors, attendees, volunteers, and donors who made this year’s event such a success. As Ben so wisely put it, “Together, we can give more kids the chance to grow up, chase their dreams, and tell their own story.” Learn More and Get Involved For those unable to attend the Fall Ball, there are still many ways to be part of the Lilabean Foundation’s mission. To learn more about upcoming events, volunteer opportunities, or how to make a donation, please visit www.lilabeanfoundation.com . Together, we can continue to bring hope and funding to pediatric brain cancer research.
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