First Ever LBF Giving Circle Helps to Fund CBTN Pre-Clinical Model Program with $20,000 Gift

Helen Keller once said “Alone we can do so little. Together we can do so much.” The Lilabean Foundation for Pediatric Brain Cancer Research (LBF) decided to take this advice and create one of the first giving circles in the pediatric brain cancer sector. Over the course of three months, a group of 15 supporters came together in a virtual setting each month to learn about the landscape of pediatric brain cancer and pooled their pledged funds to select a research project in alignment with LBF’s mission of finding more effective, safer treatments for childhood brain cancer. These 15 supporters pledged $1,100 or more that would go to one of two projects that would be presented by the lead researcher and the group would then vote on specific criteria including Reach & Impact, Innovation, Collaboration, Transparency, and Challenges. 


In addition to hearing from the project researchers, the group had the opportunity to hear from experts in pediatric cancer, philanthropy, family members and more. Speakers included Dr. Brian Rood, Director of Clinical Neuro-Oncology at Children’s National, Anne Wintroub, Founder of Upside, expert in CSR and an impassioned connector of people and ideas, Dr. Samuel Blackman, Co-founder & CMO of Day One Biopharmaceuticals, and Dr. Cassie Kline, Director of clinical research in the department of Neuro-Oncology at CHOP. During the second session, the Giving Circle cohort heard presentations from Dr. Jessica Foster and Dr. Mateusz Koptyra of Children’s Brain Tumor Network (CBTN) on two projects. Before this, our partners at CBTN put together two very informative videos for the cohort to watch that gave an overview of the projects, but the real-time discussion with researchers allowed everyone in the group to dig deeper and ask questions about these projects. Both researchers and the projects they presented were very impressive and actively working to continue progress and make advances for pediatric brain cancer. While the vote was close, the group chose to pool their dollars to fund the CBTN Clinical Model Program which aims to better understand how animal models progress the discovery of effective treatments. Lead researcher Mateusz Koptyra said after the announcement of the Giving Circle funding “I would like to express my sincere gratitude for the recognition and support that the Lilabean Foundation Giving Circle has provided me through this award. The financial assistance you've granted to my team will be of great help to us in our effort to develop quality models for pediatric brain tumor research. This award is an affirmation of the importance of our work toward the development of new clinical trials critically needed for children who are bravely fighting the battle with brain tumors. I assure you that the spirit of this award will be the cornerstone in our search for a better future for those kids. This gift will allow us to invest in equipment and support molecular characterization of our organoid models to ultimately use them in therapeutics testing. We will do our best to embody the mission that both of our organizations represent: to provide breakthroughs for every child every time, everywhere.” 


The Lilabean Foundation was thrilled to gift $20,000 through our first giving circle and know that it will help to move the needle forward in an extremely important area of research with far-reaching impact. In addition to that, creating a space where supporters and those interested in making an impact in the fight against pediatric cancer could come together and support in a new and involved way was an incredible experience. One Giving Circle participant, April FitzGerald said about her Giving Circle experience “Our family has appreciated the opportunity to be part of the first LBF Giving Circle. The idea of collaborative giving is innovative and energizing! Raising funds for brain tumor research is is an enormous feat - it can feel too big to do alone and too broad to know where to best channel the funds BUT coming together with other members of the Giving Circle allowed us to feed off the energy of others who also had the shared goal of funding a specific clinical trial.” 

Kelly Barch headshot
December 1, 2025
The Lilabean F oundation (LBF) is thrilled to announce the appointment of Kelly Barch as our new Executive Director. Kelly will work closely with our Founder and President, Nicole Giroux , to advance the mission of the Lilabean Foundation and deepen our impact for children and families affected by pediatric brain cancer. Kelly is a mission-driven leader with more than 20 years of experience building programs, strengthening teams, and driving meaningful change across organizations. She spent 16 years at the National Cancer Institute, where she led enterprise-wide recognition programs, executive recruitment efforts, high-profile events, and cross-functional workforce initiatives. In addition to her public service, Kelly is the co-owner of Clotacin, a family-owned wellness company providing high-quality nutritional support to individuals affected by blood disorders. She oversaw operations, customer experience, and brand development, helping expand the company’s reach and impact. A lifelong Washingtonian, Kelly lives in Kensington with her husband, Justin, their children, Taylor and Beau, and their dog, Boudreaux. Outside of work, she loves staying active with her family and cheering on her alma mater, the LSU Tigers. When asked what excites her most about this new chapter, Kelly shared: “I am honored to step into the role of Executive Director and excited to bring my passion for service to the Lilabean Foundation. The opportunity to fund critical pediatric brain cancer research and help raise awareness means so much to me, and I am truly grateful to be part of this mission.” Please join us in warmly welcoming Kelly to the Lilabean Foundation. We look forward to the leadership, energy, and heart she will bring to this work!
November 12, 2025
On November 1, 2025, the Lilabean Foundation for Pediatric Brain Cancer Research (LBF) hosted its 14th Annual Fall Ball at The Schuyler at the Hamilton Hotel in Washington, D.C., raising over $1.1 million to support vital pediatric brain cancer research. This fundraising milestone reflects the unwavering commitment of the foundation’s community and partners to improve outcomes for children diagnosed with brain cancer. The evening was one of celebration and remembrance, as we honored three cherished LBF Heroes—Cameron, Kasey, and Reed—though their lives were far too short, their strength, joy, and bravery continue to guide our mission and fuel our determination. The evening’s program was filled with heartfelt speeches that reminded guests of the night’s true purpose. LBF Founder and President Nicole Giroux opened the program, sharing, “Studies say that we can go weeks without food, days without water, minutes without oxygen, but we can’t LIVE a MOMENT without hope. Your presence here tonight gives me and so many others immeasurable hope. Hope is what propels us forward. Hope gives us strength to endure hardship and believe in a better future.” The first award of the night was the LBF “Cam’s Crew” Volunteer of the Year Award , presented to the Behr Family . Evan and Caitlin Behr, along with their family, have been deeply involved with LBF since 2021, generously sharing their time, expertise, and resources. LBF is deeply grateful for their unwavering commitment and generosity, which embody the spirit of this award, created in honor of LBF Hero Cameron Corno and her family. One of the most moving moments of the night was the presentation of the Jack Purssord Courage Award to Ben Bellavia-Cortezi , age 18, honoring his extraordinary strength and resilience throughout his battle with medulloblastoma. Ben’s remarks captivated the audience with their wisdom and grace. He shared, “Every single pediatric brain cancer patient and survivor is so much more than their diagnosis… I believe strongly that with more funding, researchers can develop better treatments- ones that not only save lives but also preserve the quality of those lives.” Ben is applying to colleges for next fall and plans to study mechanical engineering. The funds raised at this year’s Fall Ball will go directly toward groundbreaking research initiatives to discover new treatments and scientific advances for children with pediatric brain cancer. The Lilabean Foundation extends heartfelt thanks to all the sponsors, attendees, volunteers, and donors who made this year’s event such a success. As Ben so wisely put it, “Together, we can give more kids the chance to grow up, chase their dreams, and tell their own story.” Learn More and Get Involved For those unable to attend the Fall Ball, there are still many ways to be part of the Lilabean Foundation’s mission. To learn more about upcoming events, volunteer opportunities, or how to make a donation, please visit www.lilabeanfoundation.com . Together, we can continue to bring hope and funding to pediatric brain cancer research.
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