A Mid-Year Reflection from our Founder

Those of us who have had the privilege of spending time at a children's hospital know and understand things that many people do not. We have had the opportunity to see both pain and suffering but also hope and healing. We have been given the opportunity to see life through a different lens.


As I sit in the atrium of Children’s National Hospital while Lila is participating in a clinical study, I am reflecting on the past 13 years over which we have spent a lot of time here. It is so familiar. Like a second home. I see faces that I recognize– the woman at the front desk, the cafeteria worker, the doctor walking down the hall. I see nurses and doctors who I can’t exactly place, but I know they have been a part of our journey. Maybe it is an ENT tech, an anesthesiologist from the OR or MRI, or a nurse from one of many clinics we frequent.


I am filled with gratitude for this place and for all who work here- from top to bottom. I am grateful for their care for our family and for countless other families. And Children’s National is just one children’s hospital, in one city, in one place that works relentlessly to provide hope for children and their families.


I am also incredibly grateful for the opportunity to serve the brain cancer community through the Lilabean Foundation. I am grateful that my daughter is a living example of the need to move the needle quickly towards finding better treatment options for kids with brain cancer.


While sitting here today, I had the privilege of running into and visiting with Lila’s neurosurgeon (who, by the way, is one of our heroes). He told me about a 3-year old girl who is up on the 4th floor who was diagnosed with an aggressive tumor last week. A tumor which was resected 7 days ago and has already grown back along with hydrocephalus which will require a shunt. She needs time. She needs options. She needs action and advancements.


And that is what I am committed to. That is what LBF is committed to. Action. Progress. Advancement. In 2022 alone, LBF has granted over $400,000 to support research which we are confident will positively affect the future for kids diagnosed with brain cancer. Research which will support and inform a faster, more precise diagnosis that quickly leads to a personalized treatment plan with predicted outcomes.


After my conversation with Lila’s neurosurgeon, he rushed off to meet with a family and left his surgical hat on the table in front of me. It struck me as a symbol and a reminder of the relentless passion and dedication of ALL of the people who work here. I have one request- when you are having a bad day, please think about the girl on the 4th floor or one of the thousands of other children in hospitals this summer. I promise that the lens with which you are seeing your problems will change your focus. For the better.


It is a privilege to work on the behalf of LBF’s community of families, patients and donors. Thank you for supporting our work. Wishing everyone a wonderful remainder of summer!

Lobby table and chairs
Kelly Barch headshot
December 1, 2025
The Lilabean F oundation (LBF) is thrilled to announce the appointment of Kelly Barch as our new Executive Director. Kelly will work closely with our Founder and President, Nicole Giroux , to advance the mission of the Lilabean Foundation and deepen our impact for children and families affected by pediatric brain cancer. Kelly is a mission-driven leader with more than 20 years of experience building programs, strengthening teams, and driving meaningful change across organizations. She spent 16 years at the National Cancer Institute, where she led enterprise-wide recognition programs, executive recruitment efforts, high-profile events, and cross-functional workforce initiatives. In addition to her public service, Kelly is the co-owner of Clotacin, a family-owned wellness company providing high-quality nutritional support to individuals affected by blood disorders. She oversaw operations, customer experience, and brand development, helping expand the company’s reach and impact. A lifelong Washingtonian, Kelly lives in Kensington with her husband, Justin, their children, Taylor and Beau, and their dog, Boudreaux. Outside of work, she loves staying active with her family and cheering on her alma mater, the LSU Tigers. When asked what excites her most about this new chapter, Kelly shared: “I am honored to step into the role of Executive Director and excited to bring my passion for service to the Lilabean Foundation. The opportunity to fund critical pediatric brain cancer research and help raise awareness means so much to me, and I am truly grateful to be part of this mission.” Please join us in warmly welcoming Kelly to the Lilabean Foundation. We look forward to the leadership, energy, and heart she will bring to this work!
November 12, 2025
On November 1, 2025, the Lilabean Foundation for Pediatric Brain Cancer Research (LBF) hosted its 14th Annual Fall Ball at The Schuyler at the Hamilton Hotel in Washington, D.C., raising over $1.1 million to support vital pediatric brain cancer research. This fundraising milestone reflects the unwavering commitment of the foundation’s community and partners to improve outcomes for children diagnosed with brain cancer. The evening was one of celebration and remembrance, as we honored three cherished LBF Heroes—Cameron, Kasey, and Reed—though their lives were far too short, their strength, joy, and bravery continue to guide our mission and fuel our determination. The evening’s program was filled with heartfelt speeches that reminded guests of the night’s true purpose. LBF Founder and President Nicole Giroux opened the program, sharing, “Studies say that we can go weeks without food, days without water, minutes without oxygen, but we can’t LIVE a MOMENT without hope. Your presence here tonight gives me and so many others immeasurable hope. Hope is what propels us forward. Hope gives us strength to endure hardship and believe in a better future.” The first award of the night was the LBF “Cam’s Crew” Volunteer of the Year Award , presented to the Behr Family . Evan and Caitlin Behr, along with their family, have been deeply involved with LBF since 2021, generously sharing their time, expertise, and resources. LBF is deeply grateful for their unwavering commitment and generosity, which embody the spirit of this award, created in honor of LBF Hero Cameron Corno and her family. One of the most moving moments of the night was the presentation of the Jack Purssord Courage Award to Ben Bellavia-Cortezi , age 18, honoring his extraordinary strength and resilience throughout his battle with medulloblastoma. Ben’s remarks captivated the audience with their wisdom and grace. He shared, “Every single pediatric brain cancer patient and survivor is so much more than their diagnosis… I believe strongly that with more funding, researchers can develop better treatments- ones that not only save lives but also preserve the quality of those lives.” Ben is applying to colleges for next fall and plans to study mechanical engineering. The funds raised at this year’s Fall Ball will go directly toward groundbreaking research initiatives to discover new treatments and scientific advances for children with pediatric brain cancer. The Lilabean Foundation extends heartfelt thanks to all the sponsors, attendees, volunteers, and donors who made this year’s event such a success. As Ben so wisely put it, “Together, we can give more kids the chance to grow up, chase their dreams, and tell their own story.” Learn More and Get Involved For those unable to attend the Fall Ball, there are still many ways to be part of the Lilabean Foundation’s mission. To learn more about upcoming events, volunteer opportunities, or how to make a donation, please visit www.lilabeanfoundation.com . Together, we can continue to bring hope and funding to pediatric brain cancer research.
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