The Lilabean Foundation Funds Two Cutting-Edge Initiatives

The Lilabean Foundation is excited to announce funding for two new innovative projects. As we move into the second half of 2024, our commitment to supporting groundbreaking research remains steadfast. Here’s a closer look at the new projects we’re funding and how they’re poised to make a difference.


Transforming Brain Tumor Care for Children: Neonatal Ependymoma Injection Pilot Experiment 

Ependymoma is the second most common malignant brain tumor in children, comprising about 10% of all pediatric brain tumors. Despite efforts to enhance care, survival rates have only slightly improved over the years. The difficulty in studying and treating ependymomas stems from the lack of effective experimental models that accurately replicate the human tumor environment.


Under the leadership of Dr. Brian Rood at Children’s National Hospital, the project aims to create better pre-clinical models for studying ependymoma. The approach involves using mice with fully functioning immune systems to develop these models. By injecting tumor cells into neonatal mice, researchers hypothesize that the cells will grow without rejection, allowing for a more accurate study of tumor-immune system interactions.

Why is this project important?

The new models will help study the complex interactions between ependymoma tumors and the immune system, paving the way for more effective treatments. By understanding the biology and immune dynamics of these tumors, the research aims to improve survival rates and treatment outcomes for children with ependymoma.


Advancing Pediatric Brain Tumor Research Through Comprehensive Data Integration and AI

The Lilabean Foundation will continue to support the work of the Children’s Brain Tumor Network (CBTN) with a two-year grant of $500,000 to CBTN to include a focus on data harmonization and optimization, AI pipeline development & refinement, and project management. LBF’s previous investments have laid the foundation for groundbreaking research and transformative outcomes in pediatric brain tumor research and care. LBF is honored to continue to support this work in its next phase, by supporting data optimization as well as opportunities that utilize this data in action. These projects prioritize the finishing pieces to the foundational data that will map the frontier to translational work at the bench, ultimately creating tangible impacts for children and families affected by brain tumors. 

Supporting Data Optimization with CBTN: 

The comprehensive data enabled by the support of the Lilabean Foundation is driving previously unimaginable research and discoveries in pediatric brain tumor studies. CBTN is now poised to build on this by working with disease experts to create customized data models for many types of brain tumors. By assessing the data that CBTN currently collects, especially imaging and molecular panel data, they will identify key areas for improvement and focus on collecting and harmonizing retrospective data to integrate it with advanced AI, helping to understand brain tumors better.


As part of this funding, a few of the expected outcomes related to data optimization are:

  • Enhanced Disease Data Models 
  • Empowered Research Capabilities 
  • Accelerated Discoveries 

Supporting Data in Action with CBTN: 

With the solid foundation of optimized data capabilities, researchers are poised to push the boundaries of pediatric brain cancer research. The Lilabean Foundation will support two transformative projects.


As part of this funding, a few of the expected outcomes we will see from projects that will have real-time impact on patients diagnosed with brain tumors are:

  • Transform how we care for children with medulloblastoma and improve outcomes by reducing unnecessary side effects 
  • Pilot the validation of 3D organoid models as representation of patient tumors 
  • Establish a precision medicine framework that informs targeted therapeutic strategies 

Why are these projects important? 

Investing in the enhancement of the existing CBTN dataset through retrospective data collection and harmonization efforts is essential to advancing pediatric brain tumor research. By maximizing the potential of multimodal data integration, paired with cutting-edge AI innovations and a strategic approach to real-time application through laboratory projects, researchers and doctors will be able to unlock new insights and drive discoveries that will ultimately improve outcomes for children with brain tumors.

Thank you to all of the LBF donors, sponsors, and supporters who continue to make investments like this possible. To learn more about either of these investments, please reach out to info@lilabeanfoundation.com

Kelly Barch headshot
December 1, 2025
The Lilabean F oundation (LBF) is thrilled to announce the appointment of Kelly Barch as our new Executive Director. Kelly will work closely with our Founder and President, Nicole Giroux , to advance the mission of the Lilabean Foundation and deepen our impact for children and families affected by pediatric brain cancer. Kelly is a mission-driven leader with more than 20 years of experience building programs, strengthening teams, and driving meaningful change across organizations. She spent 16 years at the National Cancer Institute, where she led enterprise-wide recognition programs, executive recruitment efforts, high-profile events, and cross-functional workforce initiatives. In addition to her public service, Kelly is the co-owner of Clotacin, a family-owned wellness company providing high-quality nutritional support to individuals affected by blood disorders. She oversaw operations, customer experience, and brand development, helping expand the company’s reach and impact. A lifelong Washingtonian, Kelly lives in Kensington with her husband, Justin, their children, Taylor and Beau, and their dog, Boudreaux. Outside of work, she loves staying active with her family and cheering on her alma mater, the LSU Tigers. When asked what excites her most about this new chapter, Kelly shared: “I am honored to step into the role of Executive Director and excited to bring my passion for service to the Lilabean Foundation. The opportunity to fund critical pediatric brain cancer research and help raise awareness means so much to me, and I am truly grateful to be part of this mission.” Please join us in warmly welcoming Kelly to the Lilabean Foundation. We look forward to the leadership, energy, and heart she will bring to this work!
November 12, 2025
On November 1, 2025, the Lilabean Foundation for Pediatric Brain Cancer Research (LBF) hosted its 14th Annual Fall Ball at The Schuyler at the Hamilton Hotel in Washington, D.C., raising over $1.1 million to support vital pediatric brain cancer research. This fundraising milestone reflects the unwavering commitment of the foundation’s community and partners to improve outcomes for children diagnosed with brain cancer. The evening was one of celebration and remembrance, as we honored three cherished LBF Heroes—Cameron, Kasey, and Reed—though their lives were far too short, their strength, joy, and bravery continue to guide our mission and fuel our determination. The evening’s program was filled with heartfelt speeches that reminded guests of the night’s true purpose. LBF Founder and President Nicole Giroux opened the program, sharing, “Studies say that we can go weeks without food, days without water, minutes without oxygen, but we can’t LIVE a MOMENT without hope. Your presence here tonight gives me and so many others immeasurable hope. Hope is what propels us forward. Hope gives us strength to endure hardship and believe in a better future.” The first award of the night was the LBF “Cam’s Crew” Volunteer of the Year Award , presented to the Behr Family . Evan and Caitlin Behr, along with their family, have been deeply involved with LBF since 2021, generously sharing their time, expertise, and resources. LBF is deeply grateful for their unwavering commitment and generosity, which embody the spirit of this award, created in honor of LBF Hero Cameron Corno and her family. One of the most moving moments of the night was the presentation of the Jack Purssord Courage Award to Ben Bellavia-Cortezi , age 18, honoring his extraordinary strength and resilience throughout his battle with medulloblastoma. Ben’s remarks captivated the audience with their wisdom and grace. He shared, “Every single pediatric brain cancer patient and survivor is so much more than their diagnosis… I believe strongly that with more funding, researchers can develop better treatments- ones that not only save lives but also preserve the quality of those lives.” Ben is applying to colleges for next fall and plans to study mechanical engineering. The funds raised at this year’s Fall Ball will go directly toward groundbreaking research initiatives to discover new treatments and scientific advances for children with pediatric brain cancer. The Lilabean Foundation extends heartfelt thanks to all the sponsors, attendees, volunteers, and donors who made this year’s event such a success. As Ben so wisely put it, “Together, we can give more kids the chance to grow up, chase their dreams, and tell their own story.” Learn More and Get Involved For those unable to attend the Fall Ball, there are still many ways to be part of the Lilabean Foundation’s mission. To learn more about upcoming events, volunteer opportunities, or how to make a donation, please visit www.lilabeanfoundation.com . Together, we can continue to bring hope and funding to pediatric brain cancer research.
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