Jack was diagnosed when he was 4 months old. Up until the day we found out, I can only describe Jack as a vibrant, smiling and energetic baby. He was perfect. On October 19th, 2009 his life, and ours, was flipped up-side-down. As I reflect on the three years of chemo treatments, surgeries, doctors visits, feeding tubes, ICU experiences, MRI’s, tests, blood draws, life or death decisions and experiences, the one consistent was his smile. For sure Jack had bad days but every day he would always find a smile. As parents, we drew so much strength, comfort, courage and resilience from his smile. It helped us to rationalize the heartbreaking situation our family was in. Jack was very limited with his speech, but that smile and those eyes would say it all. We love you Bubba.
Use this story to draw inspiration to make a commitment to help us fight & end Pediatric Brain Cancer. Become part of our community and make a difference.
The bottom line is that we must find a cure for the #1 pediatric brain cancer. It’s our responsibility to protect their smiles.
It is unacceptable in this day and age with modern technology and medicine that our children are dying from Pediatric Brain Cancer (PBC). PBC kills more kids than any other cancer. We must and we will stop this from happening.
October 19th 2009
Age at Diagnosis:
4 months & two days old
Type of Brain Cancer:
Optic pathway Low Grade Glioma
Summary of Treatment:
During his 3 year battle with brain cancer he experienced 7 different chemo regiments most of which were originally created and are currently used for adults. Jack experience 12 surgeries including multiple shunt surgeries and a 12 hour debulking surgery that left him partially paralyzed on his left side. He was never able to stand or walk!
Together we can save the lives of kids like Jack.