Lilabean Foundation Commits $650,000 to Children’s Brain Tumor Network to Advance Precision Research

The Lilabean Foundation’s support will accelerate the pace of translational research and the discovery of new treatments for children and young adults with brain tumors.


Since 2012, the Lilabean Foundation for Pediatric Brain Cancer Research (LBF) has had one goal: to eradicate childhood brain cancer through collaboration and raising awareness of the urgent need for research. Even with this deadly disease affecting over 4,000 children annually, there has never been a drug developed to specifically treat pediatric brain cancer. 


The Lilabean Foundation has made a three-year, $650,000 commitment to Children’s Hospital of Philadelphia (CHOP). This will support “Project Accelerate,” a program within the Children’s Brain Tumor Network (CBTN), to advance the pace of translational research and the discoveries of new treatments for children and young adults with brain tumors. 


The CBTN began in 2013 as only four member sites devoted to data sharing. Today, it is a global consortium of 28 institutions throughout Europe, Asia, Australia, and the U.S. Together, they are establishing a new standard of care for patients by sharing data, resources, and expertise to accelerate and improve discoveries. It is also important to note the support of foundation partners, such as LBF, to advance the CBTN’s mission illustrates an unwavering commitment to a brighter future for all children. For nearly a decade, this commitment has fueled significant research progress and provided new hope for young patients. And through a continuation of these partnerships, the CBTN will maintain its trajectory toward life-changing clinical impact. Collectively, the consortium has created the first – and now largest – clinically annotated biorepository with real-time query abilities with the opportunity to unlock and analyze specimens to understand their molecular structures. However, the windfall of data has posed a capacity challenge. 



The $650,000 commitment from the Lilabean Foundation will allow CBTN to hire more data engineers and bioinformaticians to increase its capacity to process and empower the data to be used for research worldwide. “This will be the first time that this much data about pediatric brain tumors will be available instantly to researchers and has the potential to ultimately change the landscape of pediatric brain tumor research and care and help find the answers for each child with a brain tumor,” said Adam Resnick, PhD, Co-Director of the Center for D3b at CHOP and Scientific Director of CBTN. “With the support of the Lilabean Foundation, we are one step closer in identifying new treatment strategies that lead to new clinical trials and ultimately cures for brain tumor patients.” The funding is complementary to the recent funding from the Childhood Cancer Data Initiative of the National Cancer Institute, part of the National Institutes of Health.


LBF is a CBTN Executive Council member and, to date, has funded more than $2 million for childhood brain cancer research over the span of 10 years. Based in Washington, DC, LBF was founded in 2012 by Nicole Giroux in honor of her daughter, Lila, who was diagnosed with a low-grade glioma at 15-months-old. Since her diagnosis, Lila – now 13 years old – has been on many different chemo regimens, and the Giroux family has seen firsthand the urgent need for research to inform safer treatment options


"We are honored to support Project Accelerate and the CBTN team as we work together towards safer, more effective treatments for children like my daughter, Lila,” said Nicole Giroux, Founder and Executive Director of LBF.


About the Lilabean Foundation for Pediatric Brain Cancer Research

The Lilabean Foundation for Pediatric Brain Cancer Research (LBF) seeks to fund critical childhood brain cancer research and help raise awareness of the severity of this fatal disease. Our hope is that LBF will have an extraordinary impact on the lives of the many beautiful children affected by this terrible disease.


About the Children’s Brain Tumor Network

The Children’s Brain Tumor Network (CBTN) is dedicated to driving innovative discovery, pioneering new treatments and accelerating open science to improve health for all children and young adults diagnosed with a brain tumor. By accelerating the pace of translational research and the discovery of new treatments, the CBTN is a global community with the shared goal to save children and young adults from brain tumors.


About Children’s Hospital of Philadelphia

A non-profit, charitable organization, Children's Hospital of Philadelphia was founded in 1855 as the nation's first pediatric hospital. Through its long-standing commitment to providing exceptional patient care, training new generations of pediatric healthcare professionals, and pioneering major research initiatives, the 595-bed hospital has fostered many discoveries that have benefited children worldwide. Its pediatric research program is among the largest in the country. The institution has a well-established history of providing advanced pediatric care close to home through its CHOP Care Network, which includes more than 50 primary care practices, specialty care and surgical centers, urgent care centers, and community hospital alliances throughout Pennsylvania and New Jersey, as well as a new inpatient hospital with a dedicated pediatric emergency department in King of Prussia. In addition, its unique family-centered care and public service programs have brought Children's Hospital of Philadelphia recognition as a leading advocate for children and adolescents. For more information, visit http://www.chop.edu

Kelly Barch headshot
December 1, 2025
The Lilabean F oundation (LBF) is thrilled to announce the appointment of Kelly Barch as our new Executive Director. Kelly will work closely with our Founder and President, Nicole Giroux , to advance the mission of the Lilabean Foundation and deepen our impact for children and families affected by pediatric brain cancer. Kelly is a mission-driven leader with more than 20 years of experience building programs, strengthening teams, and driving meaningful change across organizations. She spent 16 years at the National Cancer Institute, where she led enterprise-wide recognition programs, executive recruitment efforts, high-profile events, and cross-functional workforce initiatives. In addition to her public service, Kelly is the co-owner of Clotacin, a family-owned wellness company providing high-quality nutritional support to individuals affected by blood disorders. She oversaw operations, customer experience, and brand development, helping expand the company’s reach and impact. A lifelong Washingtonian, Kelly lives in Kensington with her husband, Justin, their children, Taylor and Beau, and their dog, Boudreaux. Outside of work, she loves staying active with her family and cheering on her alma mater, the LSU Tigers. When asked what excites her most about this new chapter, Kelly shared: “I am honored to step into the role of Executive Director and excited to bring my passion for service to the Lilabean Foundation. The opportunity to fund critical pediatric brain cancer research and help raise awareness means so much to me, and I am truly grateful to be part of this mission.” Please join us in warmly welcoming Kelly to the Lilabean Foundation. We look forward to the leadership, energy, and heart she will bring to this work!
November 12, 2025
On November 1, 2025, the Lilabean Foundation for Pediatric Brain Cancer Research (LBF) hosted its 14th Annual Fall Ball at The Schuyler at the Hamilton Hotel in Washington, D.C., raising over $1.1 million to support vital pediatric brain cancer research. This fundraising milestone reflects the unwavering commitment of the foundation’s community and partners to improve outcomes for children diagnosed with brain cancer. The evening was one of celebration and remembrance, as we honored three cherished LBF Heroes—Cameron, Kasey, and Reed—though their lives were far too short, their strength, joy, and bravery continue to guide our mission and fuel our determination. The evening’s program was filled with heartfelt speeches that reminded guests of the night’s true purpose. LBF Founder and President Nicole Giroux opened the program, sharing, “Studies say that we can go weeks without food, days without water, minutes without oxygen, but we can’t LIVE a MOMENT without hope. Your presence here tonight gives me and so many others immeasurable hope. Hope is what propels us forward. Hope gives us strength to endure hardship and believe in a better future.” The first award of the night was the LBF “Cam’s Crew” Volunteer of the Year Award , presented to the Behr Family . Evan and Caitlin Behr, along with their family, have been deeply involved with LBF since 2021, generously sharing their time, expertise, and resources. LBF is deeply grateful for their unwavering commitment and generosity, which embody the spirit of this award, created in honor of LBF Hero Cameron Corno and her family. One of the most moving moments of the night was the presentation of the Jack Purssord Courage Award to Ben Bellavia-Cortezi , age 18, honoring his extraordinary strength and resilience throughout his battle with medulloblastoma. Ben’s remarks captivated the audience with their wisdom and grace. He shared, “Every single pediatric brain cancer patient and survivor is so much more than their diagnosis… I believe strongly that with more funding, researchers can develop better treatments- ones that not only save lives but also preserve the quality of those lives.” Ben is applying to colleges for next fall and plans to study mechanical engineering. The funds raised at this year’s Fall Ball will go directly toward groundbreaking research initiatives to discover new treatments and scientific advances for children with pediatric brain cancer. The Lilabean Foundation extends heartfelt thanks to all the sponsors, attendees, volunteers, and donors who made this year’s event such a success. As Ben so wisely put it, “Together, we can give more kids the chance to grow up, chase their dreams, and tell their own story.” Learn More and Get Involved For those unable to attend the Fall Ball, there are still many ways to be part of the Lilabean Foundation’s mission. To learn more about upcoming events, volunteer opportunities, or how to make a donation, please visit www.lilabeanfoundation.com . Together, we can continue to bring hope and funding to pediatric brain cancer research.
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