LBF Hero Kasey

Diagnosis Date:

July 2021


Age at Diagnosis:

5 years old


Age Now:

9 years old


Type of Brain Cancer:

Medulloblastoma


Summary of Treatment:

-10 Surgeries, Including 3 Crainiotimes

-45 Proton Radiation Treatments

-7 Initial Cycles of Chemo (SJMB12 protocol)

-1 Ommaya Reservoir Placement

-2 Relapse Trials (PBTC-058 and PNOC-027)

-15 Photon Radiation Treatments

-Multiple Cycles of Metronomic Chemo

LBF Hero Kasey smiling

KASEY'S STORY

After a four-year battle with an aggressive form of Medulloblastoma, Kasey passed away peacefully on August 16, 2025. During those years, she endured countless surgeries, craniotomies, chemotherapy, radiation, and clinical trials. Through it all, Kasey’s light never dimmed. Her love of music, her kindness, and her determination inspired everyone around her.


Kasey gave everything she had in her fight, but the lack of treatment options for children with brain cancer cut her time far too short.


To honor Kasey’s joyful, courageous, and loving spirit, we have established the Kasey Zachmann Fund for Medulloblastoma Research. Every dollar raised in her memory will go directly toward advancing cutting-edge research for Medulloblastoma with the hope of changing outcomes for other children facing this devastating disease.


We are deeply grateful to #TeamKVZ for walking alongside Kasey and her family every step of the way, and for continuing to support LBF’s mission to fund critical research.

Kasey Zachmann Medulloblastoma Research Fund Impact

To carry her legacy forward, the Kasey Zachmann Fund for Medulloblastoma Research was created to accelerate scientific discovery and innovation for children facing this aggressive disease.

PNOC044 TRANSLATING THYROID HORMONE INTO A NEW THERAPY FO RELAPSED MEDULLOBLASTOMA

PNOC044 is a new clinical trial testing a hormone therapy (T3) in combination with standard chemotherapy for children and young adults with relapsed or refractory  medulloblastoma. The study also uses liquid biopsy to detect microscopic disease and assesses how effectively T3 helps eliminate it.  

TRANSLATIONAL IMAGING ACQUISITION FOR MEDULLOBLASTOMA

This grant supports CBTN's efforts to focus on pairing existing medulloblastoma imaging with clinical records, leading to a significant increase in the collection of files available to researchers globally.