LBF Hero Kasey

Diagnosis Date:

July 2021


Age at Diagnosis:

5 years old


Age Now:

9 years old


Type of Brain Cancer:

Medulloblastoma


Summary of Treatment:

-10 Surgeries, Including 3 Crainiotimes

-45 Proton Radiation Treatments

-7 Initial Cycles of Chemo (SJMB12 protocol)

-1 Ommaya Reservoir Placement

-2 Relapse Trials (PBTC-058 and PNOC-027)

-15 Photon Radiation Treatments

-Multiple Cycles of Metronomic Chemo

LBF Hero Kasey smiling

KASEY'S STORY

In June of 2021, Kasey was diagnosed with an aggressive form of medulloblastoma. Over the past 4 years she has endured countless surgeries, procedures, chemotherapies, radiation and clinical trials. One June 23rd, doctors told the Zachmanns that their time is limited.


The doctors have said that Kasey is likely looking at weeks, not months. But there is no way to tell for sure and that Kasey has proven to be incredibly resilient over the last 4 years. So, the family is moving forward with the assumption that their time is very limited while also hoping for more time, and focused on doing whatever they can to try to control the pain. 


In honor of Kasey's joyful, courageous and loving spirit, we have established the Kasey Zachmann Fund for Medulloblastoma Research. Dollars raised in Kasey's honor will all go to supporting medulloblastoma research. 


We are so grateful to #TeamKVZ for all the support during this journey and supporting LBF to fund critical research.