In September of 2009, at 15 months of age, Lila was diagnosed with an inoperable, multi-focal Grade 2 glioma.
Since her diagnosis, Lila has been on six different chemo regimens. Regimens have varied in the way they are administered (oral or infusion), type (traditional or trial), side effects, and duration. But chemo is only part of the big picture. Because of the harmful and unknown nature of many of these drugs, there are short and long-term side effects which lead to more appointments, screenings and testing. A blood draw, EKG, sonogram or MRI become routine.
However, we have been fortunate to see firsthand how ground-breaking research in the pediatric brain cancer field gives survivors time and hope. We have been the benefactors of these innovative new treatments and therapies that LBF seeks to support. Lila's experiences push us harder and fuel our fire to continue the battle.