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Cameron Corno

Make a donation in Cameron's honor.

Cameron is a creative, fearless, happy, silly kid that loves to dance, paint, swim, play doctor, bake, go to the beach, and is the sweetest big sister to Kaitlin. After being admitted to Georgetown Hospital in March 2020, a CT scan found “moderate hydrocephalus” and she was scheduled for a full brain MRI the next morning.

 

The MRI found a posterior fossa tumor compressing the brain stem and she was rushed to a 14 hour neurosurgery. Cameron had 3 brain surgeries in just 12 days, which landed her  an extended stay in the PICU for the next month for recovery and therapies where she had to relearn how to eat, drink, talk, sit, crawl, walk, etc.

 

In May 2020 the marathon of treatment began starting with 7 weeks of proton beam radiation on her brain and spine, 4 rounds of in-patient intensive chemotherapy. Due to a metastatic, inoperable spot on her spine, Cameron began a year of metronomic (oral) chemotherapy in December 2020.  In December 2021, Officially officially rang the completion of chemo bell at Children’s National!

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Unfortunately in August of 2023, the cancer came back in her routine MRI scan. Cameron underwent her 5th brain surgery, followed by radiation. On the first day of radiation, the molecular tumor studies came back with some devastating news about Cameron’s tumor recurrence containing the “6q-loss” mutation, which is known in medical journals for having a “dismal survival rate”.  Due to this aggressive mutation, Cameron will also undergo chemotherapy as well which is in a pre-clinical trial phase since there is currently no FDA-approved method of treatment. Early studies are showing major promise in combining 5FU (chemo drug) with radiation. 

 

We are asking that you join us in supporting Cameron, her family, and the CamStrong community. 

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You can learn more about Cameron's story by checking out this episode of the LBF Podcast, where we hear from Cameron's parents, Stewi and Andy Corno. 

 

 

Age at Diagnosis:
18 months old

Age Now: 
5 years old

Type of Brain Cancer:
Anaplastic Ependymoma 

Summary of Treatment: 

-5 surgeries & 3 resections

-1 EVD placement

-2 shunt surgeries 

-7 weeks of radiation 

-4 rounds of in-patient chemotherapy 

-12 months of metronomic chemotherapy

-5FU chemo treatment in conjunction with proton beam radiation

"Curing childhood cancer isn’t just about surviving, it’s about developing less toxic treatments. Many of Cameron’s ER visits and hospital admissions have been the aftermath of the drugs that are treating the cancer - such as radiation, chemotherapy, and the sedated scans. My hope is that sharing Cameron’s story will raise awareness and funds for organizations, like LBF, whose mission is devoted to addressing the severely underfunded pediatric brain cancer research for treatment options. " - Andy and Stewi Corno

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