In September of 2009 at 15 months of age, Lila was diagnosed with an inoperable, multi-focal Grade 2 astrocytoma.
Since her diagnosis, Lila has been on six different chemo regimens. Regimens have varied in the way they are administered (oral or infusion), type (traditional or trial), side effects and duration.
We have been fortunate to see first hand how ground-breaking research in the pediatric brain cancer field gives survivors time and hope.
Most recently, Lila was on a trial drug for two years, which stabilized the cancer. The trial ended in February 2016 and since then Lila has been off of all treatment. We have been the benefactors of these innovative new treatments and therapies that LBF seeks to support. Her experiences push us harder and fuel our fire to continue the battle.
Throughout it all, Lila continues to grow, develop and thrive. She is amazing to watch. This fall, Lila will enter third grade. She loves school. She loves socializing and learning. She does, however, face learning and physical struggles that are undoubtedly due to cancer and her treatments. These chemotherapies that have shrunk and stabilized her cancer have also harmed her. Pediatric cancer treatments have many unknown and long-term side effects. That is why we are striving to do better – we have to be able to cure cancer without poisoning the bodies of our children. This is LBF’s purpose.
An inoperable brain tumor like Lila’s means a life-long journey. Our hope is that the cancer cells in her brain become inactive. This is what we pray for everyday. At this time, the only measure we have to rely on to tell us if the cancer is active is an MRI, which in Lila’s case is not a completely accurate one. There is so much innovative research in the pipeline and so much more waiting to be funded. This is why we started The Lilabean Foundation for Pediatric Brain Cancer Research.
We would like to express our deepest gratitude for the support and prayers over the years. Please continue to pray for Lila and all of the children who are faced with this devastating disease and please continue to support LBF. We know it takes an army. Lila’s Army!